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Help us find every PLN Carrier!
Together, we can show the true size of the PLN Community
If you carry a confirmed PLN genetic variant, we invite you to register with the PLN North American Foundation. Knowing how many PLN carriers are in our community, and where they are located, helps us demonstrate the need for continued research, strengthen grant and funding opportunities, advocate for PLN families, and build resources that better serve our community.
Every registration helps us create a clearer picture of the PLN community and strengthens our collective voice.
why registration matters?
Research: Help researchers better understand the reach of the PLN Community
Funding: A documented carrier community can strengthen grant and funding opportunities
Advocacy: Numbers help demonstrate the need for PLN – specific resources and awareness
Community: Help us build a stronger and more connected PLN community
EVERY REGISTRATION STRENGTHENS OUR COLLECTIVE VOICE!
This voluntary registry is intended to help the North American PLN Foundation better understand and support the PLN community. It is not a clinical research study or a substitute for medical care, genetic counseling, or participation in a formal patient registry.
Register using the form below:
Your Privacy Matters!
Your identifying information will remain private and will not be publicly displayed. Aggregate, non-identifying information may be used to help demonstrate the size and geographic reach of the PLN community.